Sam had a very precarious Christmas. When a baby is doing well, it's easy to forget that a split second can change everything, and that certainly happened for this family on Christmas day. Joy sent some new pictures reluctantly - she said she finds it hard to share pictures when Sam looks so puffy and sick, but she wanted to let people know exactly what he was facing. The first picture is Sam with his parents, Joy and Kurt. The second picture is Sam with his Aunt Stephie (Joy's sister), and siblings Matthew, Emma, and Parker. The third is just Sam. Here's the latest update from Joy:
"I never want to relive last night.
I do not want to remember the complete brokenness, we as parents had looking at our sweet baby fighting for his life...and knowing he was losing the battle.
Sam went downhill very quickly yesterday afternoon. Our prayer requests have focused on fluid retention and severe edema, and yesterday his body was at maximum capacity of fluid overload and it had had enough. Even his little ears were so swollen-they
The doctors laid everything out extremely clear for us. We could do nothing and watch Sam die. We could shut off the ventilator and watch Sam die. We could give our consent to a procedure that had the potential to help him...but also had the very high possibility of killing him. The Doctor's words still ring in my mind, she said them over and over..."we could kill him with this procedure".
Finally there were no more minutes left, and we had to walk away from our baby Samuel...we had to walk away and leave him to have this procedure, knowing we could lose him in the next half hour. We said one more I love you and gave one more kiss knowing it could be our last. Kurt and I cried like we have never cried before. It was more than our hearts could take.
We could feel people praying. We could feel you lifting us up, and bringing Sam before The Lord. There were more tears as we realized we will NEVER be able to thank you all enough for praying for our little boy. NEVER.
When the doctor came and told us that Sam made it through and there were no complications
I know that was a long one, but I really wanted you to feel Joy's heart. She said it, but I need to say it too - THANK YOU for your continued prayers and warm thoughts for this little boy. They really are helping this family!